Wednesday, 5 July 2017

#WordyandWheelyWednesdays: 'I Have No Secrets' review

Hello my lovely readers

Having said last week that I was finding my words easier whilst doing academic instead of personal writing, this week's post offers me the opportunity to merge the two, through a book review.

The book in question is I Have No Secrets, the debut Young Adult novel by Penny Joelson, whose website you can find here. It centres on (and is narrated in first-person by) Jemma, a fourteen-year-old girl who happens to have Cerebral Palsy and no independent mobility or speech. Since my PhD thesis is about the importance of disability representation (albeit in theatre) you can probably imagine my literal - and loud - squeal on first discovering this new novel and character. That squeal was one of both joy and relief. Joy for my wheely teenage self, but more so for the selves of my friends without speech, who had to search even harder than I did for characters like them. Relief for the teenage readers of today, whose searches can now be that little bit shorter.

Coming from twenty-five-year-old me, this might seem a tad extravagant to some. Surely I stopped reading YA literature years ago? That is true, and probably far quicker than my peers - but I did so for precisely the reason that I have been so excited by this book. There were just so few contemporary (wheelchair-using) characters I identified with in the early 2000s, and I consequently sought refuge in the work of earlier periods like The Secret Garden and Heidi, despite the problematic elements of their narratives. The only noteable exception came in the form of The Worry Website, written by (the genre's stalwart and beloved) Jacqueline Wilson, in which a character called Natasha used the joint website set up by her class at school to communicate her concern and disappointment at being left out of various (read here: most) things. Even then, though, because the book threads together multiple perspectives from each of the class members, Natasha wasn't developed as much as she could've been in a novel solely focused on her experiences.

That's where I Have No Secrets and Jemma arrive and, I'd argue, give to YA fiction what I said in December that Tom Fletcher's The Christmasaurus gave to younger readers. A well-rounded and relatable individual whose physical disability is a significant, but not the defining, aspect of their identity. Jemma's distinctive 'narrative voice' (a phrase which emphasises the speech-centric nature of discourses around even the written word) challenges the audience to confront the 'differences' of her reality alongside proof of her similarity, by giving equal importance to hospital appointments (happy birthday, NHS, and thank you!) and concert visits. 

This thread of sameness and difference, and the parallel considerations of absence and presence, is woven into every level of the novel's tapestry - and it is all the richer for these nuances and, the first (and perhaps most important) of which is evident in the title. Jemma indeed has 'no secrets', as she requires support with all personal care - and yet her lack of an adequate communication method means that everyone around her feels safe to share theirs. This paradox is the hinge for some crucial circumstances in the plot (which is gripping and enough of a recommendation to read it on its own). However, if you are interested in inclusion and equity, it also has wider implications, because it raises questions about the power we place behind 'speech' as a society - and who is considered capable (or worthy) of the privilege. I call it a privilege, because it is something the majority of people are lucky enough not to have to think about; but really, it's a right.

As Jemma herself puts it, thinking about a hydrotherapy session, sometimes those around her and her friends 'forget that we are people who need to be talked to as well'. I'd extend that to propose that the novel is a reminder that people with disabilities, and especially those without speech, deserve not only to be 'talked to', or even 'talked about', but to 'talk' for ourselves - in 'real life', of course, and now, at last in fiction.

So, on that note, I'm going to stop my own rambling, and end with gratitude to Penny Joelson for writing it and to all of you for reading it - because I'm sure you'll want to, if only to pre-empt my periodic nagging!

Love until next week

Jx          

  

Wednesday, 28 June 2017

#WordyandWheelyWednesdays: Fabulous Friends

Hello my lovely readers

Although my (slightly more distant and less personal) academic writing is now more or less on track again, my words have yet to arrive back in a manner where I feel able to write coherent full-length blog posts, so this entry is in the form of yet another picture. In fact it marks a return to the 'light drawings' I used to accompany my #SeasonalSonnets series, and is an offering to all of my friends for whom this week has held academic significance - whether that be through finishing A Level exams or getting degree results.

You are all wonderful, I'm so very proud of you, and feel incredibly lucky to call you my friends and to have celebrated this stage of your journeys with you.

Since you are stars, you can have a star =P!


   Jx

Wednesday, 21 June 2017

#WordyandWheelyWednesdays: Just keep swimming part 2

Hello my lovely readers

I still haven't quite got my words back, so this week's post is comprised of a video instead. (If anyone has trouble watching it, let me know, because sometimes they don't seem to show up properly.)

Although I've been very emotionally all over the place, physically things are going quite well (which is super good news for my Parallel London mission). So the video is the second in what is a apparently becoming my swimming series - and shows my regained ability to dive. I haven't done that in roughly ten years!

Without further ado, here is my goggle-eyed dive, posted with love and gratitude for the amazing support and generosity so far. It really does mean more than I can articulate.

Jx

Wednesday, 14 June 2017

#WordyandWheelyWednesdays: Resilience

Hello my lovely readers

This will be another relatively short post, as I still don't quite have my words back - but I suppose that makes sense. 

How does one linguistically encapsulate a pretty small period of time in which there was a conference, a funeral, a charity haircut and a snap general election, as well as dates of both personal and political significance (from the first anniversary of the Orlando tragedy to the birthdays and anniversaries of several of my dear departed friends)?

In the lengthy ramble of a (probably grammatically incorrect) sentence, it turns out - i.e. not very well. So, instead of boring you with either my emotional rollercoaster or the strategies I've used to power through, I'm offering you a photo as evidence that I've managed to do so. Somehow I've found a semblance of resilience, hence the title of this post. I'll leave it to you to work out what is different about me (not my new hair!) though I will say it has to do with physical support structures, and straps...!



And I'll end with a sincere thank you for my emotional support structures, too, of which you readers make up a significant part. I'm so very grateful to have you along with me, both on this specific 'marathon' mission and in my life more generally. You are just wonderful and so generous in every way. I'm overwhelmed with the support for my Parallel London walk thus far - if you'd like to read my fundraising story for Starlight, you can click here.

Love and gratitude until next week

Jx

Wednesday, 7 June 2017

#WordyandWheelyWednesdays: For Martop

Hello my lovely readers!

Today's #WordyandWheelyWednesdays entry is comprised (mostly) of a creative piece I wrote in the immediate aftermath of the news about Shane, before the enormity had quite hit me and I lost my words. It wasn't originally intended for this blog but, as I'm still struggling to form sentences, I thought I would add to it a little and post it - not least because we are all coming together today to celebrate his life. I hope it suffices, mate, and I love you:

When you’re little and people start to talk to you about being disabled, they mention things like physiotherapy and other physical interventions, as well as the fact that you’ll have to get used to people staring at you and asking questions they wouldn’t dream of putting to anyone without at disability. Questions like “Do you sleep in your wheelchair?”, “Could you go to university?” and, later, “Can you have sex?” What they don’t tell you about is the grief: about the day you’ll come to understand that eventually you’ll be one of only a handful of students from your special school still alive. Or about the fact that the kid you’re wheelchair-racing down the corridors with one week might go into hospital the next – and not come out. Or about how, due to the difficulty of navigating great distance with disabilities, most of your class reunions will coincide (of necessity) with yet another funeral. And they definitely don’t warn you that the rest of the world has absolutely no formula for dealing with such situations, because people can barely bear to broach the idea of one death, never mind many.

However, they also don’t tell you about the joy – the intense, incandescent joy of forming fast and firm friendships because you know that you have to make the most of every moment. That's what our class bond was like, tenacious teenagers throwing everything we had at the world, whether in the humour of pretending we were Andy from Little Britain or in the relief at finding characters living lives like us in Inside I'm Dancing; even if the actors weren't wheelchair users. 

So thanks, Martop, for being one of those fast and firm friends. Thanks for the hockey games, the slalom scorekeeping (even though we nearly always tied because our chairs went at the same speed). Thanks for being there for chats and early Youtube binges. Thanks for all the times you (rightly) called me a muppet and for knowing when you were being one yourself.

I'm wearing my footy shirt today - I hope you'll see us in our sports gear and be proud. I'm certainly proud to have known you. Still can't quite believe you're gone but I'm so very glad you were here.

I'll stop being soppy now because I know you'd find it hilarious.

Love you always

Marrott xxx

Wednesday, 31 May 2017

#WordyandWheelyWednesdays: Just keep swimming

Hello my lovely readers

A very short post this week as I still don't seem to have found my words yet.

So I thought you could have this video instead, to show you that I am keeping going on my mission.

Thanks so much again for all your support thus far - it really does mean so much.

Love and gratitude until next week

Jx

Wednesday, 24 May 2017

#WordyandWheelyWednesdays: A Week Off pt 2

Hello my lovely readers!

It has been quite a turbulent time, both personally and nationally, so due to that, and out of respect for all those affected by the events in Manchester, I'm taking a week off blogging properly.

I do however want to say the hugest of thank yous for all the generosity so far on my campaign for Starlight. I am overwhelmed that I have surpassed my target by so much and am so very grateful. As a thank you, and a reminder that we can get through anything if we stick together, have this video from the South African band Freshlyground:


Love and gratitude and tight holds until next week

Jx