Wednesday, 19 October 2016

#WordyandWheelyWednesdays: Fever Pitch

Hello, my lovely readers.

Just a quick note today to say that, as I have a fever, this week's post is postponed...hopefully just until tomorrow. I'm sorry about that, and I didn't want to miss an upload, so I thought I should write this before snuggling up again.

Much love

Jx

Wednesday, 12 October 2016

#WordyandWheelyWednesdays: On the importance of community

Hello, my dear readers, and welcome to the second instalment of #WordyandWheelyWednesdays! (I must confess that, in the absence of regular internet access, this one has been sneakily written as a Word document over Monday and Tuesday evenings and just scheduled to upload today – but that’s how I’m making the weekly posting work well, so hopefully you’ll forgive me!)


Following last week’s post for World Cerebral Palsy Day 2016, which I wrote as a sort of bullet-pointed ode to my disability and some of the many things I’ve learnt from it, I’ve been thinking a lot about that teaching – particularly in relation to my point on the importance of friendship. More broadly, now that I’m not trying to fit it into a concise bullet point, that can be expanded to a sense of belonging and community. So, for this week’s post, I thought I’d write about something I’m involved in at the moment that epitomises their importance – Warwick Enable.

Warwick Enable is the Students’ Union disability liberation society. It brings together disabled students/students with disabilities (more on terminology in another post), our friends, carers, PAs, enablers and allies to socialise and to work towards making campus more inclusive and accessible. We are open to everyone who cares about disability as a social justice issue. I say ‘we’, here, because I’ve been given the great honour of being President for this academic year – which brings me back to the ideas of community and belonging. On Thursday last week, I returned to the Societies Fair, this time to promote Enable to the new cohort of Freshers (of which I knew there would be a fair few, thanks to social media). I was joined by the wonderful people who make up the rest of the Exec – Katie, the Campaigns Officer; Sara, the Social Secretary and current Marketing whizz; and Rob, the Treasurer. They are excellent humans, all very lovely and just as passionate about Enable being considered on an equal level with the other liberation societies who (this year) we were granted a stall beside. We are still fairly small in comparison, so the aim is very much to grow, in order to create a stable base from which to offer a safe space for support and a forum for advocacy and change. We have lots of plans for campaigns! As a result, if anyone showed interest, we were delighted – and we have some wonderful new members from across the university (both with and without disabilities) who are raring to go.


Often, however, the interest came by way of the following question: ‘So, you’re a charity project fundraising to help disabled people, right?’, and then, when we gently said ‘We actually campaign about disability issues on campus, so if that’s something you’d be keen on –’, they left before we could finish the sentence. Now, fundraising is extremely important, and it’s something I myself have benefitted from through a number of different (and fabulous!) organisations. What struck us, though, was the assumption that that is what Warwick Enable does. People noticed that we were about disability and immediately equated that with ‘charity’ and ‘needing help’. It really brought home to us that (even in the twenty-first century, even among our generation) disability isn’t usually interpreted as relating to human rights, social justice issues and equal permission to belong, but rather as something ‘lacking’, requiring ‘help’, ‘pity’ and even cure. I am very much aware of this trend through all of the reading I do for my thesis (more on the various ‘models of disability’ in a future post), and from personal experiences with random strangers on the street, but to have it repeatedly displayed within the context of a Societies Fair during which we were very much linked to the other liberation groups was both intriguing and actually rather horrifying.


I guess it showed us just how much work we and Warwick Enable have to do to educate and mobilise the student body – every body. On that note, I’d better sign off and get back to it, because that’s essentially the point of my thesis!


Until next week, then, with much Wordy and Wheely love x

Wednesday, 5 October 2016

#WordyandWheelyWednesdays: World Cerebral Palsy Day 2016

Hello my dear readers! Yes, I am still here. I realise it's been an extremely long time since I last posted (for a combination of work- and life-related reasons, some of which will become clear at a later point.) I'm very pleased to tell you, however, that these long breaks are a thing of the past - mostly due to my desire, and practical need, to have a regular documentation of my PhD process that is slightly more in depth than the few words I scribble in my journal or save as draft texts on my phone.

Welcome, therefore, to the first of what I'll be calling #WordyandWheelyWednesday posts, a weekly write-up of my thoughts on anything I have found particularly striking or useful with regards to my body, the copious amounts of books I read, and the thing that brings them both together, my thesis on disability casting. I hope you'll read and enjoy these - I'd very much welcome suggestions on anything you think I should cover.

It was always my plan to start this project this week, because it's the beginning of the academic year, but today has turned out to be even more apt than I could have wished. Not only was it my first day back on campus, a chance to be reunited with friends whilst helping out with the Opera Warwick stall at Societies Fair and promoting our new community outreach programme (more on that later, probably next week), but it is also World Cerebral Palsy Day 2016! I knew it was soon, as it's always the first Wednesday in October, but I didn't click that it was today until my fabulous mother mentioned it and I had a chance to check Twitter this evening.

So, for the first post in this series, I'd like to pay homage to my CP. It might seem strange that I would use those words of reverence about a condition to which I have been known variously to refer to as my 'Terrible Palsy', 'Lousy Palsy', 'Chronic Partner' (and other things that perhaps aren't appropriate for this blog). Nevertheless, most of these are actually terms of endearment, and, for all the frustrations, my life wouldn't be what it is - I wouldn't be who I am! - if I didn't have my bodily (and brain-ly) buddy. Whilst it's part of my plan in the future to use these entries to discuss the difficulties with honesty, because I'm realising as I write my thesis that this is one of the gaps in theory, I have the rest of the year to fill with that. It seems only fitting to try and express my gratitude today, on the day designated for my disability, since I've been doing things I would never have dreamed of without it.

Thanks to my CP, then, for: 
  • Showing me that there is more than one way (literally!) to navigate this world
  • Teaching me (sometimes through tears) about the transience of life, and how important it is to laugh in the face of it and embrace every moment
  • Educating me early on the vital value of fast friendship - you know someone's worth hanging onto if they put a colander on your head and jump on the back of your chair because they've 'always wanted to ride a Dalek'
  • Proving that a wheelchair makes a perfect poster prop and provides a very adequate alternative to a sandwich board
  • Coaxing me to be comfortable with (non-)conformity 
  • Bullying me (often beligerently) into believing that my body is worth taking care of and nurturing
On that note, I need to listen to that bully and go to bed, because I have another busy day tomorrow. So thanks, body, for that reminder - I love you, even when you're lousy.

Thanks and love to all of you, too, for reading this - but, more than that, for being next to me in my novel navigation when I have needed you most. It means more than I think you know. 

Until next week and another #WordyandWheelyWednesday - happy World Cerebral Palsy Day!